Death Sentence

So I schedule the appointment for my 21st birthday, because that's how dense I am. Mom knew something was up and I just wanted to get drunk (legally).

Greyson brings us into the exam room, sits my down and says something I will not here again for another 12 years, "You need to listen to this!" That woke me up. I realized it was not a routine thing going on here. He began to explain that the rash on my legs plus the blood work led him to believe I had liver disease. He explained that he thought it was PSC (Primary Sclerosis Cholangitis) and that he would have to send me to a liver specialist who would be able to treat my condition. That was the good news. At that point he went to get a medical book to explain better what we were dealing with. When he left I lost it. There was anger, hyperventilating, tears, and I said, " What kind of life is this, I don't want go through this!" Mom calmed me down before he came back.

The book he brought in said that PSC is rare and incurable. The disease runs 10 to 15 years, its genetic, and triggered by trauma (surgery anyone). PSC basically triggers the immune system to attack the liver and the only known treatment is a liver transplant. He did gives us a basic rundown of what he thought my path to transplantation would be. He also said without a transplant I had 10 years left!